The effect of functioning on Quality of Life Inventory-Disability measured quality of life is not mediated or moderated by parental psychological distress

AJO Whitehouse; P Jacoby; D Reddihough; H Leonard; K Williams; J Downs

Journal article

The effect of functioning on Quality of Life Inventory-Disability measured quality of life is not mediated or moderated by parental psychological distress

AJO Whitehouse, P Jacoby, D Reddihough, H Leonard, K Williams, J Downs

Quality of Life Research | SPRINGER | Published : 2021

DOI: 10.1007/s11136-021-02855-9

Abstract

Purpose: The measurement of quality of life (QOL) in children with intellectual disability often relies upon proxy report via caregivers. The current study investigated whether caregiver psychological distress mediates or moderates the effects of impairment on their ratings of QOL in children with intellectual disability. Methods: Caregivers of 447 children with an intellectual disability reported their child’s day-to-day functioning, their own psychological distress using the Kessler Psychological Distress Scale, and the Quality of Life Inventory-Disability (QI-Disability), a measure of QOL for proxy report of a child’s observable behaviours that indicate quality of life. Linear regression ..

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University of Melbourne Researchers

Dinah Reddihough Author

Katrina Williams Author

Related Projects (1)

CHARACTERISING QUALITY OF LIFE AND ITS DETERMINANTS FOR CHILDREN WITH INTELLECTUAL DISABILITY AND THEIR FAMILIES

Approximately 2% of children are born with intellectual disability. They and their families often experience poor health and wellbeing. We w..

Grants

Awarded by Rett Syndrome Association of Australia

Funding Acknowledgements

This study was funded by the National Health and Medical Research Council (#1103745) and the Western Australian Department of Health who provided seed funding through a Merit Award. AW and HL are each supported by a Senior Research Fellowship from the National Health and Medical Research Council (#1077966, #1117105, respectively). D. Reddihough is funded by a University of Melbourne Award. The funders of this research have had no roles in the study design, data collection, data analysis, manuscript preparation, and/or publication decisions.